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Ask Prickles

 

 Hi, I'm Holly Fraser, also known as Prickles Smile

To help improve quality of life for patients I'm helping to set up this website and I'm organising the Awareness for Invisible Illnesses Campaign with our advocates. Here I hope to share valuable information and coping tips with you, to help you manage your symptoms and your situation. For tips and tricks "Prickles Corner" is the place!

Ask me a question! I will more than happy to answer it if I can or direct you to further information. Your question will be reviewed and I will post an answer as soon as I can. You may remain anonymous if you prefer. Anyone can read Prickles Corner, but to ask a question please register as a member of Diagnose Support. Membership is free of charge and obligation. If I feel that one of the other Diagnose Support team members is better able to answer your question, I will ask them to do so. If we later find out more about the topic, I will update the response to the question to ensure that our information is as up-to-date as possible.

If you feel that you can add something to a response I give to a question, or if you feel that certain information was published incorrectly, please let me know via the Contact Us option at the top of the page. I always give credit and I value good advice. Please feel free to rate my articles. If you click on the title it will open as a full page with the option to rate the article.

For more information about signing up, click here.

For a list of all topics or to search for specific topics in the Prickles corner, click here.

To ask a question after you have registered with Diagnose Support, click here or in the menu on the left.

Best wishes,
 
Prickles !  
                                                                  

Please remember that any information I provide is meant as a suggestion for you to investigate and to discuss with your health care practitioner. I am not a doctor or a medical professional, simply a patient sharing experiences, which I hope will help you to cope better.

 
 
 
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Are your joints hypermobile?
User Rating: / 2
Written by Holly Fraser   

 

Hypermobile joints are joints that have a larger range of motion than normal joints. Some people who have hypermobile joints do not experience any symptoms and their quality of life is unaffected. Patients who have hypermobile joints and experience joint pain and other symptoms are said to have “hypermobility syndrome”. Other symptoms of hypermobility syndrome include stiffness, muscle tension, fatigue and the tendency to bruise easily. Fallen arches and flat-footedness are also common with hypermobility syndrome. Less common symptoms include hernias and varicose veins. Patients who suffer from hypermobility syndrome are prone to joint dislocations, which can cause a lot of pain.

To find out whether you have hypermobility syndrome, a doctor will use the "Beighton test", which involves asking the patient nine questions...

 

Read more...
 
How to speak to doctors
User Rating: / 3
Written by Holly Fraser   

 

Doctors are warned in medical school about “difficult patients”, who don’t respond to treatment, have problems that can’t be pinpointed and keep coming back. There are ways to avoid being seen as a difficult patient.

 
Read more...
 
Why does my doctor tell me not to research my symptoms online?
User Rating: / 4
Written by Holly Fraser   

 

Dear Prickles,

My doctor told me that looking up my symptoms online is a bad idea, but he didn’t explain why. I had Lyme disease for several years before diagnosis and my doctor didn’t think to test me for it until I read about it online and asked him if Lyme disease could be causing my symptoms. Do you have any idea why he feels that way?

Thanks,

Jane, 28

 

Read more...
 
Hypoallergenic cosmetic and care products
User Rating: / 3
Written by Carla   

 

One of my issues is that I am really allergic to almost everything. Finding products that actually work and do not cause me problems is usually reason to celebrate with apple pie :). This list of items will continue to grow as I come across them or remember them. If you are interested in a product but cannot buy it in your area, please let us know and we will try to arrange to ship them to you.

  • Scrub Away
  • Face For a Day
  • Pure Oxygen
  • Finishing Touch

 

Read more...
 
Coping Tips for Personal Care
User Rating: / 4
Written by Holly Fraser   

 

Some tips to make looking after yourself a little easier for those with chronic pain, limited mobility or weakness. These tips aren’t just for girls! 

  • Medications
  • Brushing Your Teeth 
  • Showering and Bathing - New !
  • Hair Care
  • Colouring Your Hair
  • Looking After Your Legs and Feet

 

Read more...
 
How can I cope at University?
User Rating: / 1
Written by Holly Fraser   

 

Dear Prickles, I have Lupus and am hoping to start University in September, but I am worried about how I will cope. Do you have any tips? 

- Claire, Sheffield

 

Read more...
 
Germaphobic
User Rating: / 1
Written by Holly Fraser   
  

If you are unfortunate enough to catch every bug, virus or infection going round, as time goes on you may start to become a little germaphobic. I have had sinus infections on and off since I was 7 and I was always the kid who caught everything. I hate to admit it, but I am now quite germaphobic as a result of this. I just want to avoid any risk of catching something, because whenever I do, it seems to last for twice as long as it does for the person I caught it from.

 

 

Read more...
 
Breaking Through the Fog
User Rating: / 1
Written by Holly Fraser   

 

 

Help for those with memory and concentration problems

 

 

In this section:

 

  • Sleep for Success 
  • Some Supplements or Dietary Changes to Discuss with Your Doctor
  • Stimulate Both Sides of the Brain
  • Study and Revision Techniques

 

Read more...
 
Handy Tips for Housework
User Rating: / 2
Written by Holly Fraser   
  

 

 

Some handy tips to take the hassle out of housework…

 

  • Dust bites. Bite back! 
  • Bathroom Tips 
  • Washing 

 

Read more...
 
Coping in the Kitchen
User Rating: / 2
Written by Holly Fraser   

 

For those who have chronic pain, just fixing a meal can be a daunting task. Here are some tips for making life in the kitchen a little less painful…

  • The layout
  • Get a grip
  • Food shopping
  • Cooking
  • Enjoying your culinary delights

 

Read more...
 
A New Symptom
User Rating: / 2
Written by Carla   

 

When you are diagnosed with C.F.S./M.E., Fibromyalgia, or in fact any other chronic condition, it is wise to fix the symptoms both in your own and in your Primary Care Physician’s log. When a new symptom occurs it is always frightening. On the one hand your existing condition may have become worse and on the other hand, you might have developed a new condition. 

How to differentiate between these two possibilities? Do not. New symptoms should always be registered in your Physician’s log and most importantly, looked at by your doctor. Symptoms vary in severity and some will go away with some time, a diet adjustment or the discovery (and avoidance) of a new allergen. Some will remain new visitors and some will get worse over time.  

 

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Should I be a Donor ?
User Rating: / 3
Written by Carla   

 

ImageThis is an interesting question. It has come up in various communities and always triggers a lively discussion. For a good reason. The need versus quality. Which surpasses which when?

All blood banks have rules for admitting blood and, if you happen to die from A.I.D.S., or any other infectious disease, from cancer or from an hereditary disease, there is no way your organs are accepted by the transplant organisation. Everyone knows that there are risks attached to receiving a blood transfusion or organ transplant. People wait for a long period of time to receive an organ and cannot risk their body rejecting it or to be subjected to infections. In other words, it has to work first time or they will die.

 

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Hypochondria: A Real Illness
User Rating: / 5
Written by Holly Fraser   

 

“Hypochondriac” is a word that is often batted around thoughtlessly. I remember hearing it at school whenever children were off sick a lot. I was afraid of being labelled as a hypochondriac myself, because I did miss a lot of school and I knew that I looked perfectly healthy even when I was feeling awful. When a rheumatologist finally diagnosed me with fibromyalgia I was so relieved that I burst into tears. It was such a relief to have a name for it, something to tell the people who kept telling me “just think positive and you’ll be fine”.

I can't imagine how hard it must be for patients who ever receive a diagnosis of hypochondria...

 

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"But You Look OK!"
User Rating: / 7
Written by Holly Fraser   

 

People who suffer from invisible illnesses know this phrase all too well. Sometimes it is an exclamation of surprise, when you tell someone that you are sick. Sometimes it’s someone trying to cheer you up by paying you a compliment.

Those times we don’t mind hearing it… but sometimes it’s a jibe, to imply that you are not as sick as you say you are. Sometimes it is uttered to show disappointment that you are not going to a social event or have otherwise let someone down. Those times it’s a terrible sentence to hear...

 

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Should I tell my boss about my chronic illness?
User Rating: / 4
Written by Holly Fraser   

 

“Prickles, I have fibromyalgia and work a 9-5 office job. I don’t want to tell my co-workers that I am sick because I am worried that they will treat me differently or think that I am trying to get attention, but I am finding it harder and harder to conceal my symptoms. I have had a lot of sick days lately because I am too exhausted or in too much pain to make it into work and when I am at work, I am not performing as well as I should be. I always look tired and people keep asking me what’s wrong, so I just keep telling them I didn’t sleep well, but I feel like a fraud. The worst problem is that my boss is getting very irritated with me for missing so much time off work, but I’m still not sure if I should tell him. What if he thinks I am lying?”

- Sherrie, England

 

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What can I do to stop hair loss ?
User Rating: / 3
Written by Holly Fraser   
     
My hair is coming out like crazy! I've tried everything (I think) and I just feel like I'm losing twice as much as someone else..... Any suggestion would be helpful !
            Thanks..... Anon
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Triggers, misdiagnoses or causes
User Rating: / 9
Written by Holly Fraser   

 

Triggers, misdiagnoses or causes of Fibromyalgia or M.E./C.F.S.

 

It is very important to look into possible triggers, misdiagnoses or causes of Fibromyalgia and / or Myalgic Encephalopathy / Chronic Fatigue Syndrome.

 

With the help of many other fibromyalgia / C.F.S. patients, we have compiled this list for you to take to your doctor and ask him / her to help you rule out these illnesses, so that you can work out the root cause of your symptoms and treat them more effectively.

 

 

Read more...
 
Dealing with Limitations
User Rating: / 4
Written by Holly Fraser   

   

OK we all know that you have to learn to pace yourself and accept your limitations if you have a chronic illness. But we also know how hard that is when there are things you really want to do.

Read more...
 
Feeling Embarassed?
User Rating: / 5
Written by Holly Fraser   

 

Some people with invisible illnesses such as fibromyalgia or Chronic Fatigue Syndrome say they feel ashamed to use their walking stick or their disabled parking permit because they don't look sick so people are suspicious. Some people are embarrassed by the smell of their muscle rub or the fact that they can't do things that they used to do.

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How to create your own topical pain reliever
User Rating: / 6
Written by Holly Fraser   

 

Press Release
For Immediate Release
Contact: Dr. Stephen Martin
Grouppe Kurosawa
El Verano , California

If You Can Cook, You Can Prepare Your Own Powerful Topical Pain Relievers in Your Own Home

Read more...
 
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