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Because your health matters

ImagePatients with ill-defined problems are often left on their own and frequently made believe they are suffering from psychological or psychiatric conditions. There are millions of patients hidden in society, suffering from various debilitating conditions without proper diagnostics, treatment, care and support.  

Medical science is evolving. Every year more answers to previously undiagnosed conditions are found. Only time stands between now and answers that could help a lot of people. At all times physical problems like infections, organ dysfunction, nerve damage, vascular problems and rheumatologic issues should be investigated and treated.

Learn what you can do to better balance your health

and regain control over progress 

Accurate testing at the onset of symptoms and prescribing treatment is required to minimize damage and delay disease progress. Even reversal of a condition can be obtained with proper diagnostics and care. Ask your doctor to help you to improve the quality of your life. Make the first step.... educate yourself, get tested, get diagnosed, get help !!!  

 

 
Welcome to Prickles' Corner

    

      Best wishes,

  Prickles !

Hi, I'm Holly Fraser, also known as Prickles

To help improve quality of life for patients I'm helping to set up this website and I'm organising the Awareness for Invisible Illnesses Campaign with our advocates. 

In "Prickles Corner" all the awareness activities of the campaign are posted and in "Ask Prickles" I aim to share valuable information and coping tips with you, to help you manage your symptoms.

If you have any tips you would like to share or specific topics that you would like me to cover, please come in and let me know.

On the left, below the information section you will find Prickles Corner. 

 
 
 
Persistance pays off

Andrew Chia was diagnosed with C.F.S. at age 14. His father, Dr. John Chia - started investigating him and fellow patients. Andrew himself spent a lot of time in a laboratory working on the subject and is now Co-Author with his father of a study which links Chronic Fatigue Syndrome (C.F.S.) with enteroviruses, which cause acute respiratory and gastrointestinal infections.

Andrew, now 24, has shown persistance and his efforts might help millions of people all around the world. His father believed in him. Together they have set an example for the medical community.

More information & an interview can be found at: http://www.nlm.nih.gov/medlineplus/news/fullstory_54783.html 

 

 
Prickles' Fibromyalgia Documentary

A short version of Prickles' (Holly's) video was submitted to the P.A.N.D.O.R.A. video contest and has won the voting for the Fibromyalgia category. "Monkeys with Wings", starring Rik Carlson won the M.E./C.F.S. category.

The winning videos will be aired as Public Service Announcements throughout the U.S.A. and shown at conferences worldwide. We thank P.A.N.D.O.R.A. for the opportunity to help raise awareness and Elfling Productions for producing the film. Please click HERE to view all video contest entries.

If you have not viewed the long version of Holly's fibromyalgia documentary yet, please click on the image to open the full version of the video... 

If you experience any technical difficulties, please click HERE

 

 

 

 

 

 

 

 

 

 

 

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Enter your support group

As we are building links to information and support, we would like to invite all support group members and leaders to nominate their support group so we can put your information on our website. It does not matter where your group is located.

Let us know what the focus of your group is, what topics do you cover, how and how often do you have contact with each other and of course address and contact details. Feel free to use the secure email form on the "Contact us" option at the top of the page to inform us of your group and your activities.

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Kathleen fights back

ImageIn February a local online newspaper in Ohio dared to publish an outrageous editorial suggesting that the CDC campaign to increase awareness for C.F.S./M.E. was a waste of taxpayers' money....  

It just so happened that Kathleen Kraft, one of our online friends, caught this article. Kathleen, her husband Chris and over 90 other people responded on-line to the editorial website. Kathy also decided to submit a letter of protest to the executive editor at the newspaper who rectified the situation by promptly assigning a reporter to the case to interview Kathy about her C.F.S./M.E. story.    

 

After a few months the newspaper published the article and helped to shed a positive light on C.F.S./M.E. As retribution they ran two additional stories, one interview with a local doctor covering some of the medical aspects and an item on the legal issues patients face.

 

We hear of patients with invisible illnesses being treated disrespectfully all too often. It is only sporadically that something is done about it, because those who fall victim to such disrespect are too ill to put things right. We therefore honour Kathleen and Chris for fighting back.

 

It is your courage that will help make a difference for our community. Thank you both for the time and energy you have put into this.

 

Read more...
 

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